Supported by the 22q Deletion Syndrome Clinic at SickKids in Toronto, this parent-organized conference is designed to connect families whose lives have been touched by 22q11.2 deletion syndrome (22q11DS).
This annual conference aims to provide parents and families with information to help them:
- Educate themselves
- Advocate for their children
- Navigate the syndrome and the systems (education, medical and social) that impact people with 22q11DS
This annual conference is run by parents of children with 22q11DS, which means the content has been informed by parents and families.
Our co-chairs are Christine MacDonald and Lorraine Sutherns, who received the 2016 SickKids C.A.R.E. award, presented by The Division of Clinical & Metabolic Genetics for dedication and commitment to raising Community Awareness, Resources and Empathy for 22q11DS.