The 22q11.2 Parent Conference

November 2020
We’re working out the details – stay tuned!

Program & Speakers


We’re currently working on the program for our next full conference in November, 2020. If you’d like to help out next year in any capacity, or have thoughts on how to make the conference better, please let us know!


In the meantime you can check out resources from past conferences here.


Connect, share and learn from parents and experts at the 22q11DS Family Conference. You’ll have the chance to meet other families facing similar challenges. You’ll have the opportunity to learn from experts. Our kids need us to be their champions.

Limited subsidy for registration fees may be available.  Please email connect22qfamilies@rogers.com for further information.

Registration for the 2020 conference is not yet open.


Supported by the 22q Deletion Syndrome Clinic at SickKids in Toronto, this parent-organized conference is designed to connect families whose lives have been touched by 22q11.2 deletion syndrome (22q11DS).

This annual conference aims to provide parents and families with information to help them:

  • Educate themselves
  • Advocate for their children
  • Navigate the syndrome and the systems (education, medical and social) that impact people with 22q11DS

This annual conference is run by parents of children with 22q11DS, which means the content has been informed by parents and families.

Presentation of the 2016 C.A.R.E award.
Our co-chairs are Christine MacDonald and Lorraine Sutherns, who received the 2016 SickKids C.A.R.E. award, presented by The Division of Clinical & Metabolic Genetics for dedication and commitment to raising Community Awareness, Resources and Empathy for 22q11DS.

You can contact us at connect22qfamilies@rogers.com with any questions or to be added to our mailing list. 

Christine MacDonald & Lorraine Sutherns
Committee Co-Chairs


Get In Touch

If you’d like more information about the conference, please send us a message and we’ll get back to you.” Connect22qFamilies@rogers.com

Thank You

We are thankful to our sponsors whose generous support has helped to make our past conferences possible