Join us for The 5th Annual 22q11.2 Family Conference

Saturday November 3rd, 2018.

This years conference will have a focus on EDUCATION.

We are very excited to announce that Donna Cutler-Landsman will be joining us as our keynote speaker.

You can contact us at connect22qfamilies@rogers.com with any questions or to be added to our mailing list. More information on the program and speakers will be coming soon.

If you would like to DONATE TO THE 2018 CONFERENCE, we would be thrilled with your support!

Christine MacDonald & Lorraine Sutherns
Committee Co-Chairs


Connect, share and learn from parents and experts at the 5th Annual 22q11DS Family Conference.

  • When: November 3rd, 2018
  • Where: Daniels Hollywood Theatre, SickKids, Toronto
  • Why: Because you’ll have the chance to meet other families facing similar challenges. Because you’ll have the opportunity to learn from experts. And because our kids need us to be their champions.

Limited subsidy for registration fees may be available.  Please email connect22qfamilies@rogers.com for further information.

A SickKids Clinic discounted rate will be available at the Eaton Chelsea Hotel, with a letter from SickKids verifying your attendance. Contact Rozmin Vizram at 416-813-6389 or rozmin.visram@sickkids.ca for a verification letter. Please make reservations directly with the hotel by calling 1-800-588-9141.

Registration will open soon.


Supported by the 22q Deletion Syndrome Clinic at SickKids in Toronto, this parent-organized conference is designed to connect families whose lives have been touched by 22q11.2 deletion syndrome (22q11DS).

Now in its fifth year, this annual conference aims to provide parents and families with information to help them:

  • Educate themselves
  • Advocate for their children
  • Navigate the syndrome and the systems (education, medical and social) that impact people with 22q11DS

This annual conference is run by parents of children with 22q11DS, which means the content has been informed by parents and families.

Presentation of the 2016 C.A.R.E award.[/caption]Our co-chairs are Christine MacDonald and Lorraine Sutherns, who received the 2016 SickKids C.A.R.E. award, presented by The Division of Clinical & Metabolic Genetics for dedication and commitment to raising Community Awareness, Resources and Empathy for 22q11DS.

Contact the co-chairs

From the 22q11.2 Society…

This year’s International 22q11.2 Biennial Family Conference will be held in Whistler, BC on July 14-15, 2018.


Program & Speakers


This year’s conference is themed ‘Education’. We are putting together a packed agenda that speaks to current issues facing families and individuals living with 22q11DS.

Keynote Speaker

Donna Cutler-Landsman
I am an educational consultant, speaker, author and advocate who plans special education programs on behalf of children with 22q11.2 deletion syndrome and others with complicated learning needs. I am a retired educator who has spent 38 years in the classroom, teaching children in grades K through 8, and as an advisor to the gifted program in the Middleton Cross Plains Area School District in Wisconsin. In addition I have served as a cooperating teacher with the School of Education, University of Wisconsin-Madison for 15 years and I have won an Excellence in Teaching Award in Economics Education. Since 1994, I have been actively involved with issues related to the 22q11.2 deletion syndrome and education throughout the United States and abroad. I am a past president and U.S. Regional Director of the Velo Cardio Facial Education Foundation, I serve on the board of the 22q International Foundation, and I consult for the 22q Family Foundation and for the VCFS Virtual Center. In 2008, I wrote the first book dealing with the learning issues associated with the syndrome. The book, Educating Children with Velo Cardio Facial Syndrome, is now in its second addition. I have presented to groups throughout the U.S. and abroad on 22q11.2 issues and I have also produced teacher-training webcasts and a book for children with special needs entitled, So, What’s the Difference. My website is www.cutlerlandsman.com.

Please check back soon for more info about the program and the speakers.


Get In Touch

If you’d like more information about the conference, please send us a message and we’ll get back to you.” Connect22qFamilies@rogers.com

Thank You

We are so thankful to our sponsors whose generous support has helped to make this conference possible.